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This has not been universally adopted.Īction for M.E. In February 2015, the Institute of Medicine in the United States recommended changing the name to systemic exertion intolerance disease, or SEID. Within the NHS, a diagnosis of chronic fatigue syndrome (CFS) or CFS/M.E.
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means patients can experience disbelief, and even discrimination, from friends, family, health and social care professionals and employers. A lack of understanding and awareness about M.E. can have a significant impact on an individual’s life, and not just on their health. Some people may not be able to swallow and may need to be tube fed.Įven in its so-called mildest form, M.E. They need help with personal hygiene and eating, and are very sensitive to sensory stimuli. People with very severe M.E./CFS are in bed all day and dependent on care.
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They may also spend most of their time in bed and are often extremely sensitive to light and sound. They are often unable to leave the house or have a severe and prolonged after-effect if they do so. They have severe cognitive difficulties and may depend on a wheelchair for mobility.
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Some people find that they don’t go back completely to the way they felt before they became ill, but they do recover sufficiently to lead happy and fulfilling lives. Some make good progress and may recover, while others can remain ill for a number of years and may not get better. can vary enormously in their experience of the illness, and also how long their symptoms last. Not everyone will experience the same symptoms so it's important not to compare someone who has M.E. experience debilitating pain, fatigue and a range of other symptoms associated with post-exertional malaise, the body and brain’s inability to recover after expending even small amounts of energy. affects an estimated 250,000 people in the UK, and around 17 million people worldwide. Myalgic Encephalomyelitis (M.E.) is a long-term (chronic), fluctuating, neurological condition that causes symptoms affecting many body systems, more commonly the nervous and immune systems.
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